Help us find the cure for Dupuytren & Ledderhose Diseases
Welcome to my Fundraising page for funding further research into treatment / cures for Ledderhose and Dupuytren Diseases!
Several years ago, I was diagnosed with a rare form of Dupuytren disease called Ledderhose - a connective tissue disease. In the United States, there are approximately 220,000 people diagnosed with Ledderhose Disease...it is officially recognized as a rare disorder by the National Organization for Rare Diseases (NORD).
Rather than affect the hand, this form of the disease affects the foot. While I can still walk, I can no longer go for hikes, long walks or dance -- which is so heart breaking to me, as I love to dance! Even walking around a city is slow and often uncomfortable to painful.
One thing I immediately learned is that because it's a rare disease, no doctors really know anything about it and there is little, if any, focus on treatments or a cure. I've already undergone one (failed) surgery to remove the multiple nodules in the arch of my left foot....they grew back with a vengence,,,,which happens about 50% of the time.
Additionally, I'm very active helping others who have Ledderhose navigate the possible treatments as well as lending a sympathetic ear and emotional support.
Unfortunately for my children, the disease is genetic and my dad has symptoms of Dupuytren's, which I also have....and possibly my daughter.
Just a small donation will go a long way to helping me meet my goal for helping to find the cure, or at least treatment options that work.
Thank you for taking the time to read my story and I wish to thank you for your kindness and your donation.
PS If you would like to learn a bit more about Dupuytren's or Ledderhose, please click on the video below (about 2 1/2 minutes)...thank you for your support!